NEUROFIBROMATOSE TYPE 1

Kima surf image

In 2003 Claas Röhl visited Kimasurf in Bali for the first time. He enjoyed a perfect surf trip and came back to his friends at Kimasurf 3 more times.

Neurofibromatosis Type 1 is an uncurable and unpredictable genetic disease that can cause up to 500 different symptoms. Most characteristic are tumors on the nervest hat can occur anywhere in the body and cause great damage.

In 2009 his life took an unexpected turn. His then newly born daughter was diagnosed with Neurofibromatosis Type 1.

Every day a child is born with NF 1 in the german speaking countries. Half of these kids have totally healthy parents and got the genetic mutation spontaneously. Neurofibromatosis can happen to any of us.

 

 

Now his daughter is 6 years old. She already had to go through 18 month of chemotherapy and 3 surgeries. Dispite all that she is a very happy person and a real fighter.

She inspired Claas to found the NPO “NF Kinder”. This patient organization is financed by donations and fights for families with NF who often are in a very bad situation. The priority now ist o establish a center of expertise for Neurofibromatosis in Vienna/ Austria.

Every donation helps Claas to establish proper health care for patients with Neurofibromatosis, to enable sustainable research activities and after-care programs.

Please help Claas and his organization NF Kinder and donate, so that families with NF can have a better future – Thank you very much.

Kima surf image