In 2003 Claas Röhl visited Kima Surf in Bali for the first time. He enjoyed a perfect surf trip and came back to his friends at Kima Surf three more times. In 2009 his life took an unexpected turn.
His then newly born daughter was diagnosed with Neurofibromatosis Type 1. Neurofibromatosis Type 1 is an incurable and unpredictable genetic disease that can cause up to 500 different symptoms. Most characteristic are tumours on the nerves that can occur anywhere in the body and cause great damage.
Every day a child is born with NF 1 in German speaking countries. Half of these children have totally healthy parents and got the genetic mutation spontaneously. Neurofibromatosis can happen to any of us.
Now his daughter is 6 years old. She has already had to go through 18 months of chemotherapy and 3 surgeries. Despite all that she is a very happy person and a real fighter.
She inspired Claas to found the NPO "NF Kinder". This patient organization is financed by donations and fights for families with NF who are often in a very bad situation. The priority now is to establish a centre of expertise for Neurofibromatosis in Vienna, Austria.
Every donation helps Claas to establish proper health care for patients with Neurofibromatosis, to enable sustainable research activities and after-care programs.
Please help Claas and his organization NF Kinder and donate, so that families with NF can have a better future - thank you very much.